I have had this syndrome as a symptom of ME/CFS for over 15 years. It is the most troublesome symptom (very hot hands and wrist to digit pain, worst at night) I have taken 5000 IU vitamin D3 for three years but have had no remission of this symptom. Twelve weeks ago I began the following fore the ME:
This resulted in complete remission of all symptoms of ME. (mental confusion, internal tremor, diplopia, fibromyalgia, diarrhea, post-exertionial fatigue and pain, post chemical exposure nausea and pain, muscle cramps and twitching) However the Raynauds remains.
I am reluctant to increase my vitamin D to 20000 IU per day because of the high dose, however after taking 5000 IU for three years my "recent" blood level was 32ng/ml.
What do people think??
re
john1nicholson1 12 Nov, 2020 09:35
It makes a lot of sense though to use tests for diagnostic purposes. Well, testing to find strengths and deficiencies is a good thing. It allows focusing on helping to improve. But that is not the same as high stakes testing . https://www.domyhomework4me.onl
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I have taken 5000 IU vitamin D3 for three years but have had no remission of this symptom. Twelve weeks ago I began the following fore the ME:
acetyl-L-Carnitine 500mg TD
Co-enzymeQ 150mg TD
Creatine 800mg TD
Folinic acid 800mg TD
Vitamin B12 sublingual TD (dosage 1mg)
PQQ 10mg BD
vitamin K2 50 microg BD
Magnesium citrate/malate (eguiv 200 mg elemental Mg TD)
This resulted in complete remission of all symptoms of ME. (mental confusion, internal tremor, diplopia, fibromyalgia, diarrhea, post-exertionial fatigue and pain, post chemical exposure nausea and pain, muscle cramps and twitching) However the Raynauds remains.
I am reluctant to increase my vitamin D to 20000 IU per day because of the high dose, however after taking 5000 IU for three years my "recent" blood level was 32ng/ml.
What do people think??